"I only get one life and I will not let Fibromyalgia take the joy from my living it."

Friday, June 20, 2014

Fibromyalgia: Is It In Your Head Or Your Hands?

I know I'm a little late on this. But new research is showing the cause of Fibromyalgia may very well be in our hands, not in our brains. This is not necessarily bad news, just different. So don't freak out. Read these articles and tell me what you think.Healthline and INTiDYN. 


Wednesday, June 11, 2014

Ouch That Hurts!


This is a pre-nap story time gone awry. Yes, it hurts. But I try not to let my kids know that their touching me hurts. I put on a happy face and bear it. In fact, you can see me grimace in the bottom left picture. But I don't do that when they can see my face. I try to keep it under control. Of course I say "ouch" and "that hurts" when they do something exceptionally painful. And maybe two or three times a week I make them get off of me telling them, "That hurts mommy, please get down." But I think that's realistic for any parent. I do not want my Fibromyalgia to make me and mommy that they cannot touch. I want them to have all the love I want to give even if my body is not capable of giving everything that is inside my heart. These are the affectionate years. It is important for their development both emotionally and physically. And it is important for me too. These days will not last forever and they will not always be this affectionate. I will miss holding their squishy little bodies and how easily they ran into my hugs and kisses. I will admit, though, that as soon as they go down for nap it's time for a big break. I do the things that I must get done. And then I rub some oils on, take medicine if I need to, lay back on a heating pad and read to escape. That is how I am surviving lately. When they wake up the first thing I do is get those little arms wrapped around me for a huggy huggy, kissy kissy. 

Thursday, June 5, 2014

Short, Sweet, Point

I've obviously been having a hard time blogging. I'm exhausted all the time. These toddlers are kicking my butt. The only time I can do anything is when they are asleep. During their naps I have to do stuff around the house because if I try to do it while they are awake they are, ya know, inside the dishwasher, washing machine, etc. And when they go down at night I am literally right behind them. I maybe last an hour. Long enough to eat and shower. But as I was writing our friend Chelsea, I told her about our trip to the zoo for just a few hours one day and how it took me a week to get over it. You're going along starting to feel like maybe you're actually a normal person and then something happens to remind you that your not. I realized that I have these thoughts occasionally that I can try to journal. Short ones, mind you, because I usually can't complete a, finish a. . . what was I saying? Anyway, the only problem is that I say that I'm not a Debbie-downer. And some of these one liners may sound like I am. So please forgive me if my future entries sound like I'm complaining. I just may not have the energy to put coherency to the  positive thoughts in my head. I assure you, they do still live there. 

If you can't beat them, join them.