"I only get one life and I will not let Fibromyalgia take the joy from my living it."

Wednesday, October 31, 2012

Can A Hysterectomy Help With Fibromyalgia?

This is one of those graphic post so if you are squeamish, don't read it. And I'm going to just jump right in. I've had a rough week. Tuesday began with lower back pain like I haven't had in years. I started my period last Wednesday. On Thursday I went to the mall because I had to get dog food so Bradley didn't die. Just before I left the house I had put in a super tampon. When I got to the second store I felt something. So I went to the bathroom and realized I had not put in a tampon. I couldn't believe I had left the house like that. How careless. So I put in another one. I took off my panties because they were messy. That store did not have what I needed so I left and went to the next store. They also did not have what I needed so I went into Ross. So, I've only been going for about 30 minutes maybe since I left the house and I feel it again. I go into the bathroom and my shorts are completely ruined. I go to put in a new tampon and realized that I had put in one when I left the house so now I actually had two in. So I pull them out. Blood just starts going everywhere. It's all over the toilet, running down the outside of the toilet. I get scared and start shaking. Sometimes, it's good to have a baby with you. I use the baby's wipes to clean myself and the toilet. I put in a new tampon and I put a diaper in my shorts. Ross is among many things, a discount clothing store. I go straight to the pants section. I grab a couple pair of pants that might fit and go to the changing room. I call my friend and tell her that I think I'm having a miscarriage. I didn't know I was pregnant and we were not trying, but what else could it be. She comes and gets us. She tells me that I am completely white. I was weak and shaky.  I just wanted to go home. So I get home and go to change and clean myself up. Then I pass this huge piece of tissue with a few more pieces to follow. I didn't know what to do so I fished it out of the toilet and put it in a diaper. It was after business hours and I didn't want to go to the hospital. I knew they couldn't do anything for a miscarriage. So I decided to wait until the next day to go to the doctor. The bleeding slowed but I continued to pass small clots into the next day, but I was still cramping. The doctor did urine and blood tests along with a pelvic exam. He said that he did not believe that I had a miscarriage. He described a scene like this. When a farmer harvests his field he may miss a spot. The next year he may miss a different spot and certain areas become overgrown. The uterus is similar. The lining may not completely come out with each period and parts may become overgrown. Parts can even become bottle-necked near the entrance. Then with a dramatic period where there is lots of blood loss the excess tissue can come out which is what happened to me. The tests confirmed that I had not been pregnant. The exam left me in more pain. I finally quit bleeding on Sunday, but was still sore.  On Tuesday I had a trans vaginal sonogram to see if I had anything left that needed to be cleaned out or if I had any cysts, etc. Everything was clean which is good. However, he said that these dramatic periods could continue and even get worse and become a problem with blood loss. Considering my medical history and complications, my inability to take birth control, my desire to not take it due to wanting to avoid hormonal treatments he said that I may end up needing a hysterectomy. He is having me keep a journal of my periods for the next few months and then I go back for a follow up. I asked about ablation. He said that he could stop the bleeding with that, but not the pain. There is only a fifty fifty chance of the pain stopping after an ablation. I asked if I just felt the pain more because of my Fibromyalgia and he said that he has several patients with autoimmune disorders who do much better after a hysterectomy and are able to come off their medications such as Lyrica and Cymbalta. That would be nice to come off of those. I am young and do have concerns about the long term affects of their use especially on my liver. He said that they cannot tell if I have endometriosis until I am in surgery. They cannot see it on the sonogram. If I am covered with it on my ovaries, they could take those out as well. I feel like this "dramatic period" was an isolated event. But maybe he's right and they are going to get worse. And the thought of possibly getting off the meds would be nice. But this is a huge decisions. Of course, we would get a second opinion before having surgery. Does anyone know anything about this? Has anyone ever gone through this? I value your suggestions and knowledge.

Wednesday, October 24, 2012

Healthy Halloween Snack

On Sunday nights, my husband and I host a small group of teenagers in our home from our church. So this weekend I wanted to do a little Halloween themed snacks. I decided to share the healthiest one with you. Not that it is that original or difficult. You've probably seen it all over the Internet. But just in case you haven't, here it is. Whatever your choice of orange citrus fruit, just use a permanent marker to draw the faces on them. The night of the event you can cut the tops off if you want then prop them back on to make them look more like jack-o-lanterns. I want to serve them from a bowl so I probably won't do that. And I've seen tiny pieces of broken pretzel stuck into the end to look like a pumpkin stem. If you do it, post your pictures on the Facebook page.




Thursday, October 18, 2012

Honey Baltic Amber

I was looking for more Baltic Amber on Amazon to help with my migraines. I was looking at a piece that I liked, but noticed that it didn't say "Baltic" it just said "honey." So I googled to find out the difference. Evidently each color of amber helps with different ailments. And the Baltic Amber has more of the succinic acid than does the amber from other regions. So when choosing your amber for medicinal purposes, choose Baltic. And here's a little guide to help you choose your color courtesy of this website which also had some other great information on this topic. So check it out. 

Listed is the preferred Baltic Amber type next to each ailment:
Sensitive skin – Ruby
Eczema due to allergies - Lemon
Fatigue and Chronic fatigue syndrome –Ruby or multi Baltic Amber

Migraine Headaches –lemon or honey Baltic Amber
Menstrual Cramping – lemon or multi Baltic Amber

Back Pain – ruby or cognac

Chronic Pain –lemon or honey Baltic Amber

Muscular Pain – ruby, cognac or multi Baltic Amber

Morning Sickness,etc – lemon Baltic Amber

Acid Reflux – lemon or honey Baltic Amber

Rheumatoid Arthritis –lemon or multi Baltic Amber

Stomach problems and upset – honey Baltic Amber

It also helps calm and decrease stress –honey or lemon Baltic Amber

Then I ran across a pendant that I liked and the listing indicated that it was Certified Genuine Baltic Honey Amber. So look for that too. 

Monday, October 15, 2012

Chicken Noodle Soup

Here's another recipe for those of you who use the Candida diet to treat your Fibromyalgia. It comes from my friend Sarah's blog


I've recently discovered Chef Anne Burrell on Food Network and her recipes make my mouth water. Of course, the majority of them contain ingredients I can't eat but there are several recipes where substitutions can be made. I was thrilled to find that her Chicken Noodle Soup was one of those.  I only had to substitute Tinkyada rice pasta for regular pasta. I also only used a pinch of red pepper flakes instead of 2 teaspoons...what can I say - I'm a whimp! It was absolutely delicious and it was even better the second day. 

Ingredients
Extra-virgin olive oil, as needed
1 large onion, cut into 1/2-inch slices
4 ribs celery, cut into 1/2-inch dice
3 carrots, cut into 1/2-inch dice
Kosher salt
2 cloves garlic, smashed
2 teaspoons crushed red pepper flakes
1 bunch thyme
3 pounds bone-in chicken legs and thighs, skin and excess fat removed
Water, as needed
2 bay leaves
1 lemon, halved
1 teaspoon ground cinnamon
2 grates fresh nutmeg
Freshly ground black pepper
2 cups small pasta, preferably small shells such as orecchiette, or orzo
1 (15-ounce) can white beans or chick peas
1 bunch cilantro, leaves coarsely chopped

Directions 
Coat a large stock pot with olive oil and add the onions, celery and carrots. Season with salt, to taste, and bring the pot to medium-high heat. Cook the vegetables until they start to soften and are very aromatic, about 10 minutes. Add in the garlic, crushed red pepper and thyme and cook for another 2 to 3 minutes. Add the chicken and fill the pot with enough water to cover the chicken. Add the bay leaves, bring the ingredients to a boil, then reduce the heat to a simmer. Cook for 30 minutes and skim off any particles that accumulate on the surface. Squeeze the juice of the 2 lemon halves into the soup and drop in the lemon halves. Add the cinnamon and nutmeg and taste for seasoning. Adjust the flavors with salt and pepper, if needed. Simmer the soup for an additional hour. 

While the soup is simmering, bring another pot of well-salted water to a boil over high heat. Add the pasta and cook until "al dente," firm but not crunchy. Drain the pasta and transfer to a medium bowl. Add 1 teaspoon of olive oil and toss. Reserve.

 After the soup has finished, switch the heat off and remove the chicken to a cutting board. Discard the lemon halves, thyme and bay leaves. Let the chicken cool, then remove the bones and discard. Pull the meat into bite-sized pieces and return them to the pot. Taste the soup for seasoning, which should be spicy with a bright lemon flavor and a warm cinnamon chicken feel. It should be very full-flavored and warm your soul. Rinse the beans and add them to the pot. Adjust the seasoning, if needed.

Spoon some of the reserved pasta into the bottom of each serving bowl and ladle the hot soup over the pasta. Garnish with the chopped cilantro and serve. This soup is perfect for a cold day! YAY!


**remember all recipes should be adjusted to meet your specific dietary needs, please consult your physician.

Thursday, October 4, 2012

Breaking Dawn: Team Mom

It finally happens. When you think you really are about to die. Consciousness and dreams trickle together until you can no longer tell whether you are actually awake or asleep. Hunger is denied for lack of energy to bother eating. You hear crying in the distance knowing that it is just echoes in your mind that won't let go. This really is the end. I can't do this anymore. And then it happens.

You wake the next morning and the baby doesn't cry all day like she has every day previous. And she goes three hours in between bottles instead of one hour like every day previous. And she starts to actually go down to bed at a reasonable hour instead of being coaxed to sleep for three hours before being able to lay her down. Then she starts to sleep four to five hours at a time through the night. And you're able to move her to the nursery instead of the bassinet in your room. Can it be that she is getting better? That we've gotten through the colic? Am I jinxing myself by even daring to write this?

Moms have an amazing ability. Their bodies go the distance. Sure, I couldn't tell what day of the week it was or remember my husband's name. But I took good care of that baby. And now that she is settling in to this life here on earth and not quite so needy my body is feeling the effects of the last month and a half of being a new mom who also has Fibromyalgia. My muscles are sore, my joints hurt, I'm fighting migraines. My IBS is flaring. Of course it hasn't helped that I strayed from my diet after Quito left. I ate what I wanted as a result of emotional eating and gained ten pounds in two months. I didn't eat when I wasn't hungry I just ate things I shouldn't eat whenever I did eat. Now I'm trying to get back on track not just to lose the weight but to lose the pain in my stomach. And my memory is suffering something terrible. Of course right now everyone is understanding because I have a baby. They don't understand that it's like this all the time and only worse right now. Having a baby with colic was hard. It was more emotionally draining than having a drug baby. The drug babies keep us physically busy, but the constant crying of a colicky baby can wear down even the most decorated soldier. So here's to all the moms out there. Especially those who have battles of their own, but still manage to put it all on hold to care for the needs of the little ones.