"I only get one life and I will not let Fibromyalgia take the joy from my living it."

Tuesday, August 23, 2011

Scope Results

Two weeks after my tummy scope I went back to the GI doctor for a follow up and to get my biopsy results. Now usually when I check in and they weigh me I say, "I don't want to know how much I weigh, I just wanna know how much I've gained." I haven't known how much I've weighed for a few years now. I just know it's ever increasing. However, on this GIRD diet I said, "Don't tell me how much I weigh, but I would like to know if I've lost anything on this lovely GIRD diet." She laughed and said, "You've lost 6 pound," in the last two weeks. Wow! OK, honestly I feel like I should have lost 50 considering I've been starving. I just haven't adapted well. I'm too unmotivated to find recipes that fit the GIRD diet that will feed my husband and myself. Instead I'm living on Slimfast and yogurt. The doctor said that I need to do this diet for another 2 or 3 months to get my stomach back to where it was. I asked if I could just add back tomatoes and lemons. He said I could try it after two more weeks. My biopsies were normal. They tested me for gastritis and Celiac disease. I asked if that was conclusive for Celiac disease. He said that the negative results were not 100% accurate. He explained how it lies in 1 of every 5 cells and it depended on where they took the biopsy. It's also all throughout the digestive system. So I could have it, but the strict diet would help know more as I add gluten back in. He said I shouldn't worry about going strictly gluten free, just maybe go lower gluten. I'll still be on medication for a few months also. He thinks I'll be fine once my belly recovers. I hope I can stay on this diet. It's difficult to follow, but I know I need it. I definitely feel the pain when I cheat. Maybe in a few months I'll have even lost weight. Problem is I know I'll gain it all back with the first normal meal I eat. That seems to be the side effect of the Lyrica or Cymbalta. They pull out every ounce of fat in any food and cause me to gain it. It's like the opposite of Alli. Sorry, I don't mean to be a downer. The good news is that I did loose 6 pounds and I didn't have anything really wrong with me. In time I should get better.

Tuesday, August 16, 2011

Q&A: Help for Nausea

I had such a good question in the comments section on my last post that I decided to make it into a post of it's own. I thought that it might be helpful to a lot of people and I didn't want anyone to miss it. So here's my first Q&A:

"Hi, Carmen! I'm sorry to hear about your stomach. I have a very delicate stomach, too, from my bariatric surgery. I have lots of nausea, too. What causes yours? Any cures to get rid of it? I'd love to hear if there are. I take Phenergan tabs for my nausea. I hope you feel better. I'm praying for you!!
find Missy at FibroMyWhat?

Hey Missy,
Good to hear from you. Mine is a results of my sensitivity to external stimuli like smells, sounds, light, movement, changes in temperature (like walking outside from the a/c in the house to the heat outside to get the mail and then back in to the a/c), plain ole' heat, changes in barometric pressure, then also my vertigo and migraines. There are a few things that work for me depending on the severity of it. If it's just starting and not too bad you can try the old pregnancy remedies. Sprite or Sierra Mist and saltine crackers, peppermints. If you have nausea first thing in the morning keep some peppermints next to your bed and put one in your mouth and start sucking on it before you ever even lift your head. You can also drink peppermint tea. Ginger is good. You can take it in supplement form. I'm not sure if you can get peppermint like that. If you want to move toward OTC meds try meclazine. You can get it at Wal-Mart. You may have to ask the pharmacist to help you find it. Tell them your looking for the bottle that has about 100 pills in it. It is better than Dramamine because it doesn't make you drowsy. And it's much cheaper. If you talk to your doctor they'll tell you how much more you can take than what the label says. It comes in chewable, dissolvable form which can be helpful when nauseated. Some doctors will actually write a prescription for this. Depending on your insurance, you'll have to determine whether it is cheaper to buy it OTC or by prescription. There, of course, are lots of options with prescription meds and you can talk it over with your doctor. I'll tell you what has worked for me. I started with the Phenegran tablets. They do work. They down side is that they can knock you out, you have to swallow them which can be a challenge if nauseated and they take time to work like any pill. If you have a compound pharmacy around you, ask your doctor to write you a prescription for Phenegran in a gel form. It has to be specially mixed at a compound pharmacy. It's a gel that comes in a syringe (no needle, think plunger). You squeeze it onto the inside of your wrist and rub your two wrist together. The medicine is quickly absorbed through the skin and into your system. The plus side is that it works almost immediately and you don't have to swallow it. For me, it didn't seem to be as strong as the pill. So sometimes I would wait until I was stable and then hit it with a Phenegran tab chaser. However, that is not my advice as I am not an expert. In fact, I am a bad influence and you should do exactly as your doctor instructs. If your nausea if severe you can ask your doctor about Ondansetron. When my doctor prescribed it to me he said that it was the same thing that they prescribed to chemotherapy patients. Plus side, it dissolves. Downside, it can make you sleepy.

I hope that helps you. If anyone else has any suggestions on how to deal with nausea I would love to hear them also.

Tuesday, August 9, 2011

Post Scope

It's Tuesday. I had my tummy scoped on Friday. The doctor laughed at me and said that I was much more enthusiastic than most patients to have this procedure. I said that's because I am ready to fix what's wrong with me. The procedure was easy breezy. They used an anesthesia and I went to sleep in the room, woke up in recovery. There was no memory of a tube going down my throat or anything.  The girl that did my I.V. did a great job getting it in. Just one poke in my hand. Thank you, ma'am. No more mummy returns. Now the recovery has not been as easy. Mainly because I'm starving, but I'll get to that later. They did not see an ulcer or any polyps. What they did see was that my entire stomach was red and severely inflamed. They did take biopsies for Celiac disease and gastritis. In the meantime they have put me on the GIRD diet to see if my stomach inflammation will calm down, along with some medication. So the GIRD diet is gastrointestinal reflux diet. It basically keeps you from anything good. Just kidding. The biggest deal is no citrus, acid, or fat. I can't have tomatoes or any kind of citrus fruit or fried veggies. Nothing fried, in fact. Actually, no oils at all. No vegetable oil. No animal fat. No beef or pork. No lunch meat, sausages, or processed meats. No coffee (even decaf), tea (even decaf or green), carbonated beverages or caffeinated beverages. That's hard because I drink a lot of Sprite to fight off nausea. No chocolate, peppermint or spearmint, gum or hard candy. That's hard because I sometimes use peppermint to curb the nausea. All breads and dairy have to be low fat. No dairy after 6 p.m. No food at all after 7 p.m. By bedtime, I'm starving. The second day was painful because I could feel where they had taken the biopsies. I felt like the inside of my stomach had been scraped. It wasn't excruciating, just painful. So I didn't really want to eat, which was fine since there was nothing in my house I could eat. Once I started eating I was just eating yogurt, cottage cheese, things that were cold and soft. It sounds weird, but I didn't want food that might scratch the inside of my stomach. After seeing the pictures I think it made my stomach hurt more just knowing how red and inflamed it is. I'm kinda living on Slimfast and water.

I would like to write more, but I'm starting to get a little nauseated from the computer screen so I'm going to have to sign off for now. Just didn't want to leave you all hanging anymore than I already had since Friday.

Wednesday, August 3, 2011

Baked Ziti(s)

My friend, Sarah, over at Candida and Food reminded me of this recipe for Baked Ziti. She recently published the Candida Diet version on her blog. Since the original recipe was created I have made some adaptations mostly to make my husband happier ; ) so I'll post that recipe here. Now you'll have two recipes for Baked Ziti. Both recipes can be prepped for the freezer by doing everything except baking it. Just get it all ready, then put aluminum foil tightly on top then freeze. When you want to bake, thaw it out on the counter that day. Then continue with the recipe baking it, uncovered, until it is warm throughout and the cheese is brown. I usually split my batch into two smaller pans. One gets made for that evening. The other half gets put in the freezer. Anytime I can cut my workload in half my freezing a meal is great. When I know I'm going to have a day that I'll be too exhausted to cook I'll just pull out a meal to thaw and heat that night. Okay, here my updated version of the Baked Ziti.

  • 1 lb. ground turkey sausage
  • 1 large onion, chopped (I use the prechopped onion from the freezer section)
  • 3 cloves of garlic
  • 1 jar spaghetti sauce (I usually buy most organic, natural, MSG free, use what you need for you)
  • 1 box rice penne pasta
  • 2 cups mozzarella cheese
  • 1 container feta cheese
Heat a little bit of extra virgin olive oil in a pan. Brown turkey with the onion in it. You shouldn't need to drain turkey because it's not that fattening. Use a garlic press to mince the garlic into the browned turkey.

In the meantime, cook the pasta according to the directions at the lowest time. Rinse under cool water. Mix in a large bowl with the spaghetti sauce and feta cheese.
Mix in the turkey and onion mix. Pour the entire mixture into the pan(s) and top with the mozzarella cheese. Bake at 350 degrees for 30-45 minutes until the cheese is browned.

**all recipes should be adjusted to meet your specific dietary needs, please consult your physician.