"I only get one life and I will not let Fibromyalgia take the joy from my living it."

Wednesday, June 30, 2010

Facebook Badge

I added the Facebook badge which will let you go straight from this blog to the fan page on Facebook. Look for the picture that says "Find On Facebook" and click there. Be sure to "like" the page on Facebook. Post your blog on the Facebook page. You can email me, start discussion topics, ask general questions of everyone or request topics for me to write about on the blog. Let's chat!

Friday, June 25, 2010

Facebook Fan Page

Okay, other bloggers are doing it, so I'm jumping off the bridge as well. I started a Facebook fan page for the blog.  I'm just figuring out how to create this page so give me time to get it started. And I'm not sure just yet how to get you linked to it, so you'll just have to search on FB for "This Is My Fibro."  This may just be a trial run. We'll see how it goes. I really thought that when I started the blog we would have conversations here. I don't know about having them split up between here and FB. Not that there's a whole lot of conversing going on anywhere. At the moment this is more like my journal that friends occasionally peek in and I don't mind. But I do benefit from having a place to process and the encouragement I receive from you. So I am not leaving the blogroll.

Wednesday, June 23, 2010

Made My Appointment

I finally bit the bullet and made an appointment to see a doctor to follow up on my breast cyst. I've been doing the Progesterone. Have you ever watched the show The Doctors? Well, the other day they were talking about the dangers of self-medicating and it made me wonder about the progesterone I'm using. But I do have an appointment and I don't plan on concealing anything from my doctor. Although I gotta say, I don't think it is shrinking. It is still hurting. If anything I think I have more than what we found at the other appointment. My breast just hurt in certain spots. So I'm ready to see what's wrong. Yikes!

Tuesday, June 22, 2010

Help Making The Bed

So I'm making the bed when my hands start cramping and hurting really bad. It's from having to grip the sheet tightly while I pull it down and over the corners. It really hurts. Does anyone have any little tip or advice on how to make it easier to make the bed? Is there some secret tool for gripping?

Saturday, June 19, 2010

Prompt Progesterone

So I started Progesterone Therapy to try to reduce the size of the cyst found in my breast. The directions on the bottle said to apply it twice a day two weeks prior to the beginning of your menstrual cycle for premenopausal women. That's me, premenopausal, even though at times my hot flashes make me feel menopausal. But I was anxious to get a jump on it and start shrinking that thing. So shortly after my cycle ended I began the progesterone. After about a week and a half I was feeling very energized. I was staying up late, which ended up not being a good thing, but still I was very AWAKE. I kept thinking "Man, I shouldn't have taken such a late nap. Oh, wait, I haven't even had a nap." Or wondering how many glasses of tea or coffee I'd had that day only to realize, none, I've given up caffeine! Could it possibly be the progesterone? I don't know. But I've had more energy than normal. And not as many hot flashes. Seriously. It's worth trying. Then one morning I woke up to my period. I kid you not, it was exactly two weeks from when I started the progesterone. So when I thought I would be getting in a little extra progesterone therapy, it actually made me start my period early. Two weeks to the exact time of day. Amazing. Now, I don't know if it's helping the cyst. It's still hurting. I can't say whether it's smaller or not. I do have an appointment coming up. And I will tell the doctor about the progesterone I've taken.

Friday, June 18, 2010

EZ Moves

Ok, I told you I would give you some helpful tools that I found while moving. The EZ Moves™ II Furniture Slides. I bought them from U-Haul, but I'm sure you could find them other places. I didn't use them as much packing as I did when in the new house trying to unpack. They work amazingly well. They only work on carpet, however, they do have some for hard surfaces as well. The hardest part about using this product is getting them under whatever it is your moving. For instance, I wanted to move the cedar chest. Well, if I'm by myself, I have to lift each corner of the cedar chest and slip one under. But once they are under it's easier than pushing an old lady down. Okay, bad example. But we were moving the cedar chest a lot because we didn't know where it was going to go. So I left the EZ Moves under it. Once we had decided it's permanent location, I just pulled them out. We used it to move hutches and larger items. While my husband lifted the corner I would slide it under. I was able to use it completely by myself to move a large houseplant without any trouble. I moved the futon which was a little more difficult. My husband came home and asked "How did you move all this stuff?" Like I've been faking Fibro all this time :)
I would say that if you have something you move a lot, get a set of these and keep under it. Or if you move things a lot that you can't move by yourself, but you could lift each corner by yourself, this would work beautifully. It was so nice to be able to just move stuff around my house again. It's not as good as having muscles, but it makes the life I do have easier.

Wednesday, June 16, 2010

Progesterone Therapy

"Menopause and fibromyalgia have many overlapping symptoms such as depression, anxiety, sleep disorders, and vasomotor symptoms (hot flashes and night sweats). Fibromyalgia symptoms tend to worsen during menopause, but research shows that estrogen and progesterone replacement therapy is not that beneficial to FM sufferers. One study showed that hormone replacement therapy may actually worsen FM symptoms. As described above, lower estrogen levels can predispose patients to pain. Changes in estrogen levels in the blood are accompanied by changes in a variety of neurotransmitters, particularly serotonin and substance P. Substance P is a neurotransmitter and is elevated in the cerebrospinal fluid of FM patients. Serotonin is a neurotransmitter which suppresses substance P. Low levels of serotonin are seen in FM patients as well as in patients with anxiety and depression." from Change of Life by Dr. Aysun Alagoz. Well, that makes me reconsider whether or not I want to take progesterone therapy, especially long term. Of course, I'm taking it to shrink a cyst. So I see that as a temporary solution. With side benefits of extra energy and fewer hot flashes.

Breast Cyst

Just before moving I had my annual women's health exam. During the breast exam the doctor pushed on a certain spot and I said that it hurt really bad. And of course she said "Right here?" and pushed on it again. "Yes" I squeaked in pain. She said that she could feel a cyst. I was concerned since my mom is a breast cancer survivor. But I did know that tumors don't hurt, cyst do. The doctor wanted to do an ultrasound but they couldn't get me in that day. It was a Friday and we were moving the next week. So she just said to cut out caffeine and if it was still tender in a month to find a new doctor here to have it checked out. There were other factors. My appointment was just a day or two before I was about to start my monthly cycle so she said that it could be hormonal. And of course the stress of the move. But I will admit that I have been drinking a lot of sweet tea from restaurants. I know it's bad. But I may have become addicted. After my appointment I talked with girlfriends who had also had cyst. One was put on vitamin E by her doctor. Another one suggested Progesterone therapy. I actually have noticed that my breast hurt. In fact, it seems that they hurt worse when I take my bra off. It's like they are less painful when they are bound. I find that when I get out of the bed, or shower or wherever I may not be wearing a bra, I will cup my breast and hold them up to relieve the weight. This seems to relieve some pain. My mom told me that she always had real cystic breast. Well, that's not a good sign for me. I googled the link between FMS and breast cyst. I didn't find much except that breast cyst are evidently a very common symptom in people with Fibro. There didn't seem to be much success with vitamin E therapy so I decided not to stick with it. But I am doing the Progesterone therapy. It may help with other areas too. And of course, I am going to kick the caffeine. If you have any suggestions, please let me know.

Tuesday, June 15, 2010

Moving with Fibro

Us in front of our new house

Sorry I have been gone for so long. We have moved across country. Well, to the next state. But it's probably the same. So I have managed fairly well considering how hard it is to move an entire household.  We had to move ourselves. I began packing two months before the move. My goal was to pack two boxes a day. I thought that was very reasonable. Sometimes one box is so easy to pack. Now don't get me wrong, I didn't meet my goal every day or even most days. But I did make the effort. I made sure that my breakables and most precious things were packed by myself. That made it easier to relax when the friends and family came in at the last minute to pack everything else. And since the company was reimbursing us we bought our moving supplies through U-haul. I gotta say, they have some products that have come in very handy for me. I'll share them soon. For me the biggest thing is that now I have to find a new doctor. I've asked around and so far have had no luck. I've posted on Facebook and gotten no responses. If you have any recommendations for primary care, ob/gyn, or chiropractors in the San Antonio area, please let me know. And this is a BIGGIE for me,  it's now been two weeks since I've seen my chiropractor. I usually see her at least once a week so I'm definitely feeling it. But our new house does have a hot tub. So I plan on using that to my advantage.