"I only get one life and I will not let Fibromyalgia take the joy from my living it."

Monday, October 11, 2010

Small Fiber Neuropathy In Fibromyalgia

I read a new article which talks about Fibromyalgia possibly being Small Fiber Neuropathy. They determined this by taking skin biopsies. Okay, so I don't know much about this, I'll admit. Here's what I do know. I was having a lot of pain in my feet. Yes, most of us have trouble with pain and stiffness in our feet when we first get up in the morning. Sometimes it will go away after a little while. But mine was not going away. People were suggesting that I had plantars fasciitis. I also had tingling and numbness in my feet, legs, hands and even lips sometimes. I went to the doctor and he tested me for Neuropathy. I didn't test high enough to have Neuropathy, but I did test higher than "normal". But, of course, could I ever be considered normal? He also did blood work and everything came back normal. That I do always have. Normal blood work. Which is always good, right? Except that it never tells us what's wrong. You know the feeling. You're waiting for blood results. You want everything to be okay. But at the same time you hope that it does show something so you'd at least know something. That was about six months ago. So, I still am having the tingling and numbness in my feet and legs. Sometimes in my hands and lips. The next time I go to the doctor I'll talk to them about it again. Click here to read the article "Small Fiber Neuropathy in Fibromyalgia and Chronic Fatigue Syndrome" by Adrienne Dellwo. Now tell me, how do you think Neuropathy relates to Fibromyalgia? She asks if you've responded well to neuropathy treatments. But I'm not sure what neuropathy treatments are. Can you tell me?

12 comments:

  1. Neuropathy treatments start out usually with a medication call Neurontin. I have bad neuropathy in my feet and legs. Sometimes it feels like I'm touch someone else's leg and not my own. Crrepy! I've been on neurontin for a year now, almost maxed out on the dose, but it took away that "fiery" pain and the "electrical" shots I had going down my legs. Now I get them every once and awhile. I think fibro and neuropathy do run hand in hand. It seems like a lot of blogs I've been on, the patient has both conditions.
    Hope this helps!
    Have a nice night!

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    1. Yes neuropathy treatments start out with a medication. A simple physical therapy treatment is a good choice along with this treatment. back and neck pain bergen county

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  2. Hi, again! :0) Thank you for commenting on my blog. I had thought about giving the movies to the two that entered the give-away. I just find it funny that I can't even give-away stuff!!! Anyway, I have a lot of stuff to do before I have the surgery, which has yet to be scheduled. I have to go to a lung doctor, my cardiologist and a psychologist still, round up my records from everyone, and then the bariatric clinic submits everything to the insurance for authorization. It's a lot of work....but it will pay off. I also have to get down on the lowest dose of Prednisone, too. It will help me heal better if I do that. I will be on a liquid diet for two week prior to surgery and two weeks after the surgery, then I can start soft foods. I can't take large pills, though, as it will get stuck in my new smaller stomach. It will be a BIG lifestyle change!! Sorry this note is so long...just wanted to answer all your questions. You have a nice day and thank you for kindness & friendship. :0)
    Hugs, Missy

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  3. Here is a good source of information:
    http://www.therapath.com/Mast_Cell_Density.php;
    http://www.therapath.com/Overview.php

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  4. Oh, thank you for that. I can't wait to read it. But for now, I must go to bed.

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  5. Hello!

    It's so nice to hear of someone else who feels the way I do...you wish for something abnormal to show up so you can finally get an answer that means more than the typical Fibromyalgia watering hole routine. Right now I am seeing a neuro who wants to test for SFN via skin biopsies, but as self-pay uninsured, do I really want to pay all the money to be told another test in normal and that it's "just your FM"? This is driving me crazy! Your symptoms are similar to mine but I have severe truck collision pain all day and all night, every day, and am almost crippled to the point of needing a wheel chair. Almost every waking hour I am asking myself how to endure this Hellish fate. So often I have been told my doctors they this is all in my head. My very first symptoms were severe vertigo and some hearing loss in 2001 and it has progressed to severe body-wide pain and stiffness, muscle twitches and cramps, skin feels like someone rubbed icy-hot all over me, mysterious dents in my legs, frequent headaches, sensory loss of touch on my skin, additional hearing loss, 125% worstening of my eyeglass rx in the last year, IBS symptoms, twitching of my internal organs, tingling and humming all over my body, tremors, ringing in my ears, severe rib pain (front and back), pain induced anxiety, heart palpiations that go crazy when I lie down, brain fog, weight gain, inability to sleep (wake up several times even while on ambien), awful fatigue, and the list goes on and on, and on, and on.

    I'm so discouraged. Thank you for having your blog. What a joy to find you. I hope you feel better and get some relief. Gabapentin takes the edge off...a little. This FM has, for the most part,accomplished stealing my joy of writing. This battle is an uphill one, for certain. I pray we get more medical studies and the research grant attention we truly deserve.

    Hugs and best wishes,

    Kristine Cheney
    www.kristinecheney.com

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  6. Kristine, I'm so sorry to hear that this is taking your true passion. There are times when I get scared and think, "Can I really be a mom?" But then my anger boils up inside of me and I yell "I have a right to be a mom and Fibro shouldn't be allowed to take that away!" It doesn't keep those days from coming though. It doesn't keep the thoughts from haunting me of would I be cheating a child to have them raised by me, someone with limitations. But then I see so many people who are great parents who are blind, deaf, in wheelchairs, or others limitations who have parented successfully. But in truth, all parents are limited, right? Because we are all just people. I have to look on the positive side. My passion to raise children (even if they aren't mine) is based out of love. And the Fibro can't steal that. Your gift is to write. The Fibro can give you Fibrofog and memory loss and a list of other brain farts. But can it steal your creativity? Your gift of story telling? If you feel like it is then let's make a plan to stop it. It may include hiring an assistant. But your stories must be told. And Fibromyalgia may be giving you the greatest story you've yet to tell.

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  7. I happened to come across an article that associated neuropathy w/ fibromyalgia. In the last couple weeks I was I was thinking that the neuropathy & fibromyalgia were connected. I just found an article that proved that. I got the neuropathy first (not diabetic) then the fibromyalgia. The neuropathy is really bad now and also the fibro. I just found a cream for the feet. It is really great. Takes that awful burning and most pain away, It's Magnilife diabetic foot cream. Walgreens carries it and also Rite Aide. There are online sites also. It has made a huge difference for me. Meds don't work or cant tolerate them. Hope this is helpful.

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  8. Great post..Fibromyalgia is the most common musculoskeletal condition after osteoarthritis. Fibromyalgia is a common and chronic disorder. When a health illness or condition is chronic it means it is long-lasting. visit our site for good tertments for Back Pain, Diabetes, Fibromyalgia, Thyroid, chronic pain, sciatica, whiplash, headaches & nutritional disorders. http://www.drbastomski.com/

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  9. Fibromyalgia is the most common musculoskeletal condition after osteoarthritis. Fibromyalgia is a common and chronic disorder. When a health illness or condition is chronic it means it is long-lasting
    visit this one also for good treatments of Back Pain, Diabetes, Fibromyalgia, Thyroid, chronic pain, sciatica, whiplash, headaches & nutritional disorders. http://www.drbastomski.com/

    ReplyDelete
  10. Great post..I happened to come across an article that associated neuropathy w/ fibromyalgia. Here is a good source of information: Neuropathy Cream

    ReplyDelete