"I only get one life and I will not let Fibromyalgia take the joy from my living it."

Wednesday, October 27, 2010

My Aching Chest, I Gotta Rest

OK, my boobs are hurting really bad today. Don't know why except that I have recently finished my period. Just part of the hormone moodiness. My friend took me shopping in this little town today. I didn't think that I should walk around holding my breast as that is what helps them feel better. So I took some Aleve before we left. It must have helped. That or the adrenaline of the shopping trip. We went to a great little town and walk around to these little boutique shops. We had lunch and did some wine tasting. I decided to add making wine glass charms to my beading business. We were gone about 4 hours. She wore me out. I didn't feel that tired while we were out, but I came home and slept for four hours. Is that right??? An hour of sleep for an hour of activity. But my husband was so nice. When he came home the dogs got out of bed with me. They never woke me up. He played with them and gave Brodie his medicine, fed them and started dinner. He did all of that without ever waking me up. I was so grateful when I woke up all on my own. But after being awake for about an hour I could have gone right back to sleep. It was a great day, but I'm amazed at how tired I was later.

Monday, October 25, 2010

The Good With The Bad

I was talking on the phone with a friend back home. She was concerned about how I was feeling because she has been reading my blog. Evidently I'm always talking about how bad I feel. True. That's what I do here. I focus on my Fibromyaglia and how it affects my life. But what I don't focus on is how it has NOT affected my life. Now that my friend does not see me on a regular basis and only reads my blog, she thought my health had taken gone downhill. Sure there are things that are worse. But there are things that are better now that I'm not working and now that I'm in a more stable weather environment. So I would say that I'm about the same as she remembers. In fact, most people who know me are surprised when they find out that I have Fibromyalgia. And my doctors have always commented on how well I do in general. I think it is because, for the most part, pain is not my issue. Yes, I have the pain associated with Fibromyalgia. I met the criteria on the tender points chart. But my pain is not as debilitating as it is for most people. Although I do have my flare-ups and my bad days. My issue, as stated in my "about me" on the sidebar, is the hyper-sensitivity to external stimuli. Light. Sound. Smell. Motion. Changes in temperature, air pressure, barometric pressure, ventilation. It results in vertigo, nausea and migraines that are for the most part controlled with my prescription glasses and medications. Lifestyle helps prevent pain flare ups. So here's what you should know about me. For every bad day, I have 10 good ones. So when I'm not writing about the bad days it's because I'm not writing about the good days. I'm busy trying to live them.

Thursday, October 21, 2010

A Bad Influence

Has it really been a month already? I feel like you were just here. Like an old college friend who comes for a visit, wearing me out. Except without all of the fun. Oh, you make me eat sweets and drink sodas. Needing it like an addiction. I'd replace a meal with dessert. I don't care, just give me the freakin' chocolate. And I'm so tired. I didn't wake up until 10:30 this morning. Shut up, rest of the world! You who whine "wish I could sleep that late." You don't know how it feels to wish I didn't have to sleep this late. Only to need it again in just a few measly hours. Wow. That was b*tchy. Did I mention that you bring out the worst in me? . . . When you visit. . . . Really? . . . Has it only been a month since my last period?

Monday, October 18, 2010

Christmas Bazaar

I've been so busy lately that one of the many things I've neglected are my blogs. I have been preparing for my Christmas Bazaar. I started to meet people. Well, I actually started because one girl asked me to have a home party for her scrapbooking business and the other girl sitting there said "if you have a party for her, you have to have a party for me," (she sells candles). So I came up with the idea of having them at the same time and asking other ladies who do things to get in on it so that we could invite all of the ladies from the Bible study and my scrapbook and card swapping groups. The idea being that I could meet people that I've come in contact with or have more contact with the people I've met. Because I don't think I just say "Hey, I'm brand new to town and I don't know any of you, so why don't you all come over to my house for a "whatever" party and spend your money so I can get some free crap." However, I feel more comfortable saying that I'm having a festival type event where you can come get lots of Christmas shopping done in one place. Some of the vendors are home consultants. Some are local people who make things and sell them as a business or just for this event. The vendor end has exploded. So much that I no longer have room in my house. I have even opened up the guest room for space, three tables on the back deck and one vendor is bringing her awning to set up in the backyard. Now we need the shoppers. And I really hope they come. Because I have been working my katookis off getting all this planned and I still have lots of food to prepare, get my own booths ready, house clean (like actually clean), sign and balloons for front yard. Okay I feel like I'm making a To-Do list now. But don't worry, I don't want you to be left out. So you're invited too. Some of the vendors have websites. I am going to post their websites on the blog so you can do some early Christmas shopping, too. The party begins here November 6th, 2010.

Sunday, October 17, 2010

And The Award Goes To. . .

I recently received the One Lovely Blog Award. It is a blog award that is meant to be passed on between fellow bloggers. When I accepted it, I had to agree to pass it on to blogs that I felt were worthy. I am supposed to choose 15 blogs. That's a mighty task for me. At least to choose 15 that are new to me. And a lot of the blogs that I follow are so big that I think they probably don't do the whole award thing. I started my list and was saving it thinking I would post when I had them all. But then I thought, this is going to take forever. So I decided that I would post as I found them, a couple at a time. You can enjoy them along with me. And I won't forget to do them all no matter how long it takes, I promise. So here are my first picks:

Home Schooling Goodness
This wonderful lady is the mother of two young children. She is a teacher by trade. She takes the time to home school her oldest child while maintaining the hectic therapy schedule of her baby girl who has Down Syndrome. Her blog is a combination of lesson plans, book reviews and personal journal as a mommy. She also is a consultant for Usborne Books.

On Life and Beans 
This amazing woman is mother to six children. She cooks dinner on a budget. And when I say she cooks dinner, I mean she cooks healthy, organic, fresh. And when I say she cooks on a budget I mean 8 people on $5 for the whole meal. Crazy cheap! And Healthy! I've had her food and it tastes good. So try it out.

Monday, October 11, 2010

Small Fiber Neuropathy In Fibromyalgia

I read a new article which talks about Fibromyalgia possibly being Small Fiber Neuropathy. They determined this by taking skin biopsies. Okay, so I don't know much about this, I'll admit. Here's what I do know. I was having a lot of pain in my feet. Yes, most of us have trouble with pain and stiffness in our feet when we first get up in the morning. Sometimes it will go away after a little while. But mine was not going away. People were suggesting that I had plantars fasciitis. I also had tingling and numbness in my feet, legs, hands and even lips sometimes. I went to the doctor and he tested me for Neuropathy. I didn't test high enough to have Neuropathy, but I did test higher than "normal". But, of course, could I ever be considered normal? He also did blood work and everything came back normal. That I do always have. Normal blood work. Which is always good, right? Except that it never tells us what's wrong. You know the feeling. You're waiting for blood results. You want everything to be okay. But at the same time you hope that it does show something so you'd at least know something. That was about six months ago. So, I still am having the tingling and numbness in my feet and legs. Sometimes in my hands and lips. The next time I go to the doctor I'll talk to them about it again. Click here to read the article "Small Fiber Neuropathy in Fibromyalgia and Chronic Fatigue Syndrome" by Adrienne Dellwo. Now tell me, how do you think Neuropathy relates to Fibromyalgia? She asks if you've responded well to neuropathy treatments. But I'm not sure what neuropathy treatments are. Can you tell me?

Sunday, October 10, 2010

One Lovely Blog Award

 Missy, she's so sweet. She gave me this award. 

This is what she said: "I was awarded this beautiful award for my blog a few days ago
and it is one of those awards where you put it on your blog and pass
it on to fellow bloggers you feel are worthy of it.  Well, I
immediately thought of your blog.  Yours is my fave on the net! I look
forward to hearing from you on your posts."

That is so sweet. I hope I can keep living up to those expectations : )  
Now I have to find 15 blogs to pass it on to. The instructions say blogs that I've newly discovered. But I think I have a few old blogs that I may bend the rules for. 
I probably won't get them all out real fast, you know with the Living Life At Half Speed and all.
But I eventually will get there. I already have a few in mind.

Thanks again, Missy.

Saturday, October 9, 2010

Is The Whole World Down Or Just My Internet?

The other day my internet was down. I had a sudden rise in anxiety. I know it's silly, but I actually had a little panic attack. Having just moved so far away, I've really come to depend on my internet to stay in contact with the outside world. All of a sudden I could not email, facebook, check blog updates. I felt so disconnected. Yes, I could make a phone call or get in my car and leave. But I thought maybe, just maybe, Texas really did have a big bubble that they could lower down over the state and cut off communication to the outside world. What if? Surely I would know if it was the end of the world because someone would post it on facebook. Except that I can't get online to check. I remember my freshman year in college I had never even been on the internet. Can you believe it? I didn't have a cell phone. If I wanted to find a friend and they didn't answer their dorm phone I had to walk my butt across campus to find them. Two things come to mind immediately. 1) my butt was much smaller then. 2) I always remember college as the best time of my life. My panic attack didn't last long because I do realize that I have a vivid imagination and my adult brain kicks in and tells my imagination to calm down. But for a very short while that day I felt very alone. Isolated. Cut off from the world and just a wee bit scared.

Thursday, October 7, 2010

Neither Here Nor There

Let's start with the good news. I don't remember if I mention that the last time I was at the doctor, at my last breast appointment, I had only gained 1/2 a pound. That's great for me because usually I gain 3 or 4 pounds at every appointment. I've quit letting them tell me what I weigh. I say "don't tell me what I weigh, just tell me how much I've gained." This time I think that I only gained half a pound because before I had worn flip flops and taken them off to weigh. Gross, I know. But I'm desperate. This time I was wearing tennis shoes. That's worth half a pound, right? So I've finally quit gaining weight. Of course, I've quit eating too. Just kidding, but I have been working really hard. Here's the bad news. I had one of those $10 gift cards that Kohl's sends you in the mail. So I went to find something on clearance because I'm cheap. I couldn't find anything in the ladies. So I go over to the women's department where I expected to go anyway. I grab a few things in an 18. I try those on and they were too big. That's great, right? Wrong. I'm stuck. I'm in between, again. The regular clothes don't fit because they are too tight. They plus sizes are too big. So what do I do? It's practically impossible for me to lose weight. So what, gain weight just to fit in the next size up? I've spent most of my life here. In the in between. Seriously, I think the gap between the regular sizes and the plus sizes is too large. In fact, it's about the size of me.

Tuesday, October 5, 2010

Blank Blog

I know I haven't been blogging much lately. There was my period which always wipes me out for a week. I'm too exhausted to do my regular things, much less make a sentence for a blog. For some reason it seems to come around every month. And with Fall all the activities pick back up. I literally have three reoccurring things on my calendar. I go to the ladies Bible study on Tuesday morning, church on Sunday morning and then small group on Sunday night. And that seems to be all I can handle. Why is that? I feel like I can't put anything else into my calendar, yet it is so clear. But the normal daily life activities just take me so stinking long to do. I've thought of several things to blog about in the last few days. I've had ideas running through my mind. This is the first chance that I've had to sit down and try to tap them out. And what happens? Nothing. I can't remember a single one. Just a blank screen. By the time that I remember what I was going to write about it will be irrelevant because it was probably time sensitive. I don't know. I can't think. I'm using all my brain power and body energy for other things, you know, like life. But I am enjoying life. I can say that. I think the depression is lifting. I knew it was situational. I am settling in here. I'll be fine. I always knew I would. Right now I just need to go to bed. You can probably tell. I sound kinda tired. But I didn't want to leave the pages empty for too long. I'm still here.

Monday, October 4, 2010

Free Sample of Neru Patch

Ok, fibro friends, I do not know anything about this patch, I've never heard of it. But I did see in my blogroll this offer come through so I wanted to pass it on to anyone who may be interested.  

Free Sample of Neru Patch Foot And Leg Discomfort
Only Available for Shipment within the United States, click here.