"I only get one life and I will not let Fibromyalgia take the joy from my living it."

Thursday, April 8, 2010

Total Body Pillow

If you read this blog you know that I've fallen in love with the Boppy pillow for relief of shoulder pain. On the Boppy website there is a Total Body Pillow. It looks like something I would like. I always sleep on my side with a pillow between my legs and a pillow in my arms to keep my shoulders from falling forward. This pillow looks ideal. I want to know if anyone has tried it. Let me know if you have and what you think of it.


  1. Im sorry you feel that way about the group on facebook. We whine and complain to each other and yes do have our negative times too. Why you ask because its the only place we can go where people can have some understanding of the pain. So if that bothers you I am sorry but some of us need to complain about how miserable we are there cause no one in our lives have any clue!!! If you have it try being understanding you sound like on the bigot doctors!

  2. I have to agree, I've found that facebook has saved my life with all its understanding and "venting." My family is great, but just don't get it. I can't tell them how I really feel, I need to do that in my support groups on facebook. I've met some fabulous people...give it an honest try and vent yourself. Just because we vent, doesn't mean we are "negative." In fact, venting helps to release negative emotions that we may otherwise take out on other people. I find myself "lighter" now and not as crabby, knowing that I have a group of people that truly understand how I feel.

  3. I am still part of the groups on Facebook. And I read the discussions and I even post questions. I answer the questions they ask. I guess I get frustrated when the moderator will ask a question and instead of answering the question, someone will just start listing their symptoms or venting, totally nothing to do with the day's topic. Maybe they should have a Discussion Board just for that. I've also not found much help in these groups. I've asked for referrals for doctors in my area. I've asked for help about certain symptoms etc. But I never hear anything back. I would have thought that a group that large and diverse would have some advice. I'm just not getting it. Which is why I started this. Still not what I hoped, but maybe one day it will be more. I did get a hit today for a recommendation on a doctor. But maybe I'm just not a ventor. But you know, you had a very good point. If your venting on FB makes you less negative around the people you have to see face to face on a daily basis, then go for it. We're all different. I've been really blessed in my situation. I know there are so many people out there who have FMS who have NO ONE who even cares or probably believes they have it. I admit I don't understand what that's like. I guess I just want to look at the silver lining. There has to be one. There has to be!!! Thanks for your feedback. I will change my "About This Blog" so as not to offend others. Well, not to offend as much. I'm still going to be honest :)

  4. You and I are very alike! I would love more interaction on my blog, too. I do a post, pour my heart into it, and get NO comments. I put a guestbook on my blog and the only person who signed it was my husband! So I took it down. I was going to do a poll, but then decided against it as I was just certain nobody would participate! So I know how it is to ask questions and not get answers. :0) I started my OWN facebook page to promote my blog, "FibromyWHAT?" and you can find the link on my blog site. I don't remember it off-hand. (Sorry!) I'm hoping that this page will promote positivity, advice & the stories you and I are so desperately seeking. We shall see!
    God bless!